I returned to the hospital this morning and found they were having a problem getting the Chemo medicine approved and delivered from the specialty pharmacy to our house by tomorrow. They told me that they couldn’t have us stay in the hospital if he didn’t meet the criteria of a “sick person”. The doctors were in a meeting discussing us and our situation. They told me if we didn’t receive the medicine at home and we had to be released from the hospital that I would have to buy a 2 weeks supply of this medicine for $1,300. When I asked why so much, they said you are very lucky because it costs $13,000 per month. So another miracle happed. As of this afternoon the specialty pharmacy called to tell me they were able to get it overnighted to our house and it will be there by tomorrow. What a major blessing for us.
They are filling 14 more prescriptions for us to pick up from the Pharmacy tomorrow so that we can be discharged from the hospital temporarily. We will be discharged but will return every other day for testing and treatments until the transplant. It will give Van some time to spend at home with his family. After the bone marrow transplant he will be staying in the hospital a minimum of two months and a minimum of two months in the condo.
His white blood cell count has gone up a little to 16,200. The platelet count is up and the kidneys are much better.
The kids are busy sterilizing the house to get it ready for Dad to arrive. There are some new rules we will have to implement in our home when he arrives. One, he can’t be around any cooking, cleaning, dirty laundry, or vacuuming. During these particular activities Van will have to remain in the inner sanctum where dust or air movement cannot reach him (our bedroom). Lucky guy! It just goes to show how far someone will go to get out of doing housework. I bet they told him he can’t take out the garbage either. Two he will pretty much have to stay away from large crowds.
Van was teaching the scriptures to his nurses and this is what he prophesied: Mosiah 24:15-20 “And the Lord did strengthen him (Van) that he could bear up his burdens with ease, and he did submit cheerfully and with patience to all the will of the Lord. And it came to pass that so great was his faith and patience that the voice of the Lord came unto him saying, be of good comfort because on the marrow I will deliver you out of bondage. And in the morning the Lord caused a deep sleep to come upon all the Lamanites (nurses and task masters). And Alma (Van and his family) departed into the wilderness.” So tomorrow is our day of redemption from the bondage of this burdensome facility (for a least a day).
We’ve been blessed with many wonderful visitors who have brought cheer and joy to a very difficult situation. Thank you so much for your love and your time.
Friday, January 8, 2010
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Van and Wendy, we wanted you both to know we love you both very much, we are praying for you and following your blog. You are both so strong and it is so nice to feel both of your strength through your words. We are worring and thinking about Van a lot and want you to know it's nice to get on an have an update and to see both of your strength. We love you and are praying Van and your entire family. With love Mike and Jen.
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