People ask me all the time, “How is Van doing?” My reply is great! I started thinking about that. The word GREAT is very subjective. Three months ago when I said "He is doing great" is totally different than at this time. Now, when I say he is doing great, he probably has only thrown up once in the last few days, he’s had a blood and platelet transfusion, his white blood cell count is zero so he doesn’t have an immune system and he’s bald and tired all the time. But he is doing GREAT! It’s the new norm!
This afternoon Van had his first fever scare. I took his temperature and it was 100.6, I called the doctor and they had us come into the outpatient to take more blood cultures (7 bottles of blood). His temperature was normal when we got here but decided to spike right before we were supposed to leave. They are worried about infection especially since he doesn’t have an immune system. So they checked us into Hotel Leukemia. We even have a view of the Salt Lake Temple. How cool is that?
We wanted to thank everyone for their letters, emails, posts and phone calls. It’s so good to hear from you. When you post to our blog, we immediately receive it in our inbox. So we don’t miss any of your comments, we are always kept up-to-date. I just wanted to remind everyone about the information on the right side of our blog. You can find information about how to post a comment, how to contact us, and how to be a bone marrow donor. Thanks so much for your love and support.
